When filling out the adoption paperwork for Ian to join our family, we had to identify resources in our community that could support our son’s upper limb difference. We knew it was a blessing that just 30 minutes away was Shriners Hospitals for Children. However, at that time we had no idea of the impact that the team at Shriners Hospital would make on our family and just how grateful we would be for this amazing resource in our own backyard. Here are three ways Shriners Hospital has improved our lives:
#1 Modeling Acceptance. Did you know representatives from Shriners Hospitals visit schools and teach about physical differences, equip children with vocabulary to discuss disabilities, and provide hands-on experiences with prosthetic devices, braces and more? I didn’t until the counselor at Ian’s school arranged for outreach visits to his school, and Ian came home from school with a “finger cast.” He then shared how Miss Lee and Miss Kristen from Shriners had visited his class with dolls, braces, and made molds of the children’s fingers to show them some of the services provided at the hospital.
With their modeling and accepting language, Ian told me how he decided to stand up in front of his class and tell his friends about his upper limb difference. His classmates asked him questions like, “Does it hurt?” or “Will it grow back?” And with pride, he answered them, “No, it doesn’t hurt” and “Nope, it won’t grow back”. For a child once taught to hide his little hand, with the guidance of Kristen and Lee, he was able to educate others and share with confidence how he can do anything. He just does it differently.
#2 Making Play Accessible. Kids are meant to play that is how they learn and explore the world. But when a child has a physical difference, his/her ability to fully engage with his/her surroundings may be limited. For Ian, he takes on most two-handed tasks like cutting his food, zipping his coat, or even playing basketball by making modifications. It takes practice, but he usually figures it out and doesn’t look back. However, learning to ride a bike proved to be unusually challenging for him. After lots of falls, scraped elbows and knees, and plenty of band-aids, Ian decided to ask the doctors at Shriners for some help. During our annual visit to the upper limb difference clinic, he stretched out his arms and said to the doctor, “Look at my arms, they are not the same length. It makes me wobble, and fall off my bike. Can you help me?”
The doctor held Ian’s outstretched arms, smiled back at him, and said, “You’re right. They are not the same. But, we can make you a bike hand and that will help you balance on your bike. Do you want a bike hand?”
“Yes!” exclaimed Ian. Then, the nurse simply walked us out of the examination room and down the hallway to Pediatric Orthotic and Prosthetic Services Department (POPs). There Brock (he really is as cool as his name) made a mold that day for Ian’s new bike hand. It wasn’t until a rainy and cold November day that Ian got to test out his new bike hand. Since the weather wasn’t cooperating, Ian got to ride smiling down the hallways of the hospital. It was absolutely thrilling to watch him maneuver confidently around the corners and even ride one-handed while giving the nurses and doctors high-fives.
BIKING UPDATE: In August, after lots of practice Ian finally learned to ride his bike without training wheels. Learning to ride his bike was a redefining moment for Ian. He truly learned to believe that he could do anything!
#3 Valuing Our Story. This third gift of valuing our story I never expected, but it might be the most important service that Shriners has provided to our family. The staff listened our story. They understood our story. They encouraged us to share our story. In the end, they valued our experience and literally offered a helping hand when we needed it. Their encouragement let us know that anything is possible for Ian. Their compassion let us know that it is okay to ask and accept help with no conditions attached. So on this #GivingTuesday, please consider supporting this amazing organization with a donation. And remember, always believe in the possible.